Privacy Policy

Effective Date: April 1, 2026

Helio LLC ("Helio," "we," "us," or "our") is committed to protecting the privacy and security of your personal information. This Privacy Policy explains how we collect, use, store, share, and protect information when you use our biospecimen marketplace platform, including findhelio.com, heliorewards.com, and all related services (the "Service").

Because our platform handles health-related data, we hold ourselves to the highest standards of data protection. This policy describes not just what data we collect, but the specific architectural safeguards we have built to keep your information secure.

1. Information We Collect

1.1 Information from Donors

1.2 Information from Researchers

1.3 Information Collected Automatically

2. How We Use Your Information

We use the information we collect for the following purposes:

We do not sell your personal information. We do not use your health data for advertising or marketing purposes.

3. Three-Tier Data Architecture

This is the core of how Helio protects your privacy. Your data is not stored in a single database. It is deliberately separated into three isolated tiers, each with different access controls and purposes.

Tier 1: Identity Vault

Your personally identifiable information (PII) — name, email, phone, date of birth, address, payment details — is stored in a secured, encrypted Identity Vault. This vault is isolated from all research-related data. Access to the Identity Vault is restricted to authenticated system operations required for account management and payment processing. Researchers never have access to the Identity Vault.

Tier 2: Research Profiles

Your health conditions, demographic data, and specimen-relevant characteristics are stored as anonymized Research Profiles. These profiles contain no names, contact information, or other directly identifying data. Research Profiles are what Researchers see during the matching process. A Researcher viewing a matched profile might see "Female, age 35-40, Type 2 Diabetes, non-smoker" — but never your name, email, or any information that could identify you personally.

Tier 3: Helio ID (The Bridge)

Your Helio ID is a unique, randomly generated identifier that serves as the sole link between your Identity Vault record and your Research Profile. The Helio ID is the only connection point between who you are and what your health profile contains. This separation means that even in the unlikely event of a data breach affecting one tier, the exposed data alone cannot be used to identify a specific individual and their health information.

This architecture is not a future plan — it is the foundational design of the Helio platform. Every data operation respects these tier boundaries.

4. HIPAA Compliance and Health Data Protection

Although Helio is a marketplace platform and not a covered entity under HIPAA in the traditional sense (we do not provide healthcare services), we voluntarily adopt HIPAA-aligned safeguards because we believe your health data deserves the highest level of protection regardless of regulatory classification.

Our HIPAA-aligned practices include:

5. Data Sharing

5.1 What We Share with Researchers

When a Researcher's specimen request matches your health profile, the Researcher receives your anonymized Research Profile (Tier 2 data only). This includes health conditions, demographic ranges, and specimen-relevant characteristics. Your personally identifiable information (name, contact details, date of birth, exact age) is never shared with Researchers.

5.2 What We Share with Collection Facilities

When you schedule a specimen donation, we share your name, contact information, and appointment details with the approved collection facility to coordinate your visit. Collection facilities are bound by their own HIPAA obligations and by contractual data protection agreements with Helio.

5.3 Third-Party Service Providers

We use the following third-party services to operate the platform. Each provider processes only the minimum data necessary for their function:

5.4 Legal Disclosures

We may disclose your information if required by law, regulation, legal process, or governmental request. We may also disclose information if we believe in good faith that disclosure is necessary to protect the rights, property, or safety of Helio, our users, or the public.

6. Data Retention and Deletion

6.1 Active Accounts

We retain your data for as long as your account is active and as needed to provide the Service. Health profile data is retained to enable ongoing matching and to maintain the integrity of historical donation records.

6.2 Account Deletion

You may request deletion of your account at any time by contacting [email protected]. Upon receiving a verified deletion request:

6.3 Inactive Accounts

Accounts with no activity for 24 consecutive months may be flagged for review. We will notify you by email before taking any action on an inactive account.

7. Cookies and Tracking

Helio uses minimal cookies, limited to those strictly necessary for the operation of the Service:

We do not use advertising cookies, tracking pixels, or third-party analytics cookies. We do not participate in cross-site tracking or behavioral advertising networks.

8. Children's Privacy

The Service is not intended for individuals under 18 years of age. We do not knowingly collect personal information from anyone under 18. If you are a parent or guardian and believe your child has provided personal information to Helio, contact us at [email protected] and we will promptly delete such information.

9. California and State Privacy Rights

If you are a California resident, you have additional rights under the California Consumer Privacy Act (CCPA) and the California Privacy Rights Act (CPRA):

Residents of other states with consumer privacy laws (including Virginia, Colorado, Connecticut, Utah, and others) may have similar rights under their respective state laws. To exercise any privacy right, contact [email protected]. We will respond within 45 days.

10. Data Security

We implement commercially reasonable technical, administrative, and physical safeguards to protect your information, including:

No method of transmission or storage is 100% secure. While we strive to protect your information, we cannot guarantee absolute security. If you become aware of a security vulnerability, please report it to [email protected].

11. International Users

The Service is currently available only to users in the United States. Your data is processed and stored within the United States. If we expand internationally, this policy will be updated to address applicable international data protection requirements, including GDPR compliance for European users.

12. Changes to This Policy

We may update this Privacy Policy from time to time to reflect changes in our practices, technology, legal requirements, or other operational factors. If we make material changes, we will notify you by email at least 30 days before the changes take effect and post a prominent notice on the Service.

The "Effective Date" at the top of this page indicates when the policy was last revised. We encourage you to review this policy periodically.

13. Contact Information

For questions, concerns, or requests related to this Privacy Policy or your personal data, contact us at:

Helio LLC
Email: [email protected]
Website: findhelio.com

For data deletion requests, please include "Data Deletion Request" in your subject line and the email address associated with your account.


Last updated: April 1, 2026